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Subject:still here
Time:01:22 pm
Current Mood:determineddetermined
was just checking up to see about the date in history. Aaron and I have been married for 4 years now. I should continue with the stuff I had planned to do. (Assemble cabinets, clean litterboxes.). Assembled the general gifts. He'll survive without a card. :D
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Subject:alive
Time:11:35 pm
Still alive. Just looking at LJ.. Been quite a while. Very very long time since I've been here. Bought a house. Like the house. 2 cats. Cold outside. I guess LJ is using my faulty laptop clock for the time/datestamp.
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Subject:out and in
Time:02:54 pm
Current Mood:relievedrelieved
Haven't posted in a while! Still live in the DC metro area. 2011 started and ended with a bang! Between my serious illness & hospitalization, 2+ grandmotherly deaths (mine, his, and his cousin's), and a car accident (his) the year was probably overall not so great. There were some highlights, I got the wilderness first responder certification, my RN (and CNA) in my new state. And his job has proven to be an excellent move for him (emotionally and career wise).

2011 is starting off pretty well. I start a new job in a few weeks. Scary as it's the first time I've worked in like 3 years (granted, I spent a lot of that time in school which was like a full-time job). Three 12-hour shift/week. Plenty of people do it. Scares and intrigues me. Plus rotating shifts (days and nights!). Will take some getting used to.

Right now, my biggest 'worry'? is my allergies.. I'm sniffly, sniffly, sniffly.
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Subject:Tee Fury - bad for wallets
Time:03:50 pm
So, I've gotten a few TeeFury shirts ($10 shirts is nice... $6 for grab bag).. Bought a pair for Aaron and I. Bought one I fell in love with, and another for Aaron.. And bought 5 'grab bag' shirts..
My first buy (a pair): http://www.teefury.com/archive/1238/The_Herd/
My favorite thus far: http://www.teefury.com/archive/1232/Unforgettable_Walk/
Aaron's : http://www.teefury.com/archive/1254/Brute_Squad/
I think I really like this one: http://www.teefury.com/archive/1149/Albert_Funkenstein/
http://www.teefury.com/archive/1218/The_Son_Of_Orange/
http://www.teefury.com/archive/1236/Here_s_Johnny/ (Now I gotta re?watch Short Circuit)
http://www.teefury.com/archive/1162/Scooby_Who/
http://www.teefury.com/archive/1189/88MPH/
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Subject:nothing to see here...
Time:11:05 pm
So, I'm feeling fine now.. Been home a week. Eating well. Seem to be doing everything I should be. No pain. Not stressed out. I am supposed to schedule a follow up CT scan in about 2 weeks, and then have a doctor's appointment about a week later. I may have just spontaneously ejected the need for the second doctor's appointment, or hastened it...
TMICollapse )
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Subject:not home
Time:11:16 pm
So, the guy that did the (successful?) attempt at removing the necrotic tissue from my pancreas is a GI guy. He's not my main doctor, but he's (one of) the reason I chose to come to UMMC. My primary doctors are surgeons. And, well, if what he did worked, they're now out of a job. The GI guy figured I could go home today, the surgeons wanted to give me a feeding tube and keep me till Monday when I can get a CT. I think the surgeons have been under the impression that I was currently experiencing necrotic pancreatitis, rather than recovering from a post-surgical infection of the already necrotic tissue in my pseudocyst. So, they figure I'm having digestive issues, etc, when I really wasn't. I'm still gunna be in the hospital till Monday (it's saturday night), and have a CT scan done, but I don't think I need to have the feeding tube. I'm able to eat fine with no pain/discomfort. So, two more days of IV fluids and being in a hospital (at least I finally got a menu so I could pick my poisons).

They have finally (i've been 2 days now clear liquids/real food) decided to drop my IV to KVO (keep vein open), rather than 100 ml/hr. My pee today has been something like straw colored.

Overall, pain is gone. I can press down anywhere on my belly, and have no pain from it. I get full when I eat. I still have gas. Not terribly annoying, but a little bit.

Just waiting for Monday. =)
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Subject:new surgery - endoscopic who knows what
Time:08:54 am
So, the surgery thing was a success. They stuck stuff down my throat to see if they could locate and reopen the hole between my stomach and the pseudocyst. Oh boy could they. There was pus coming out of it and everything (eew!). So, they opened it up and put a stent in to keep it open for a while (I have to come back in 10 days to get it removed). I'm not exactly sure what they did, but it included debriding the necrotic tissue out of the remainder of the pseudocyst. There was saline flushing involved, too. I have some printouts of pictures through the procedure. One shows a big circle where the necrotic tissue was, and then the after picture of healthy tissue (the pseudocyst wall). The surgery went better than expected - they expected to leave me with a draining tube from the pseudocyst and a feeding tube into my jejunum or lower in the intestines. I woke up worried because I had neither. In the morning, I will be allowed a clear liquid diet (I really hate missing out on real breakfasts), and I should be discharged tomorrow or Saturday (more likely).

My throat is in lots of pain (similar to the initial surgery). Hate talking and swallowing. They gave me chloraseptic spray (with Phenol). It doesn't help. I also requested bags of ice for my throat, which I got. Not sure it really helps with the pain, but it still felt nice on the outside. Attempting to gargle with the melted ice can be nice, and trying to get a small ice chip to melt in just the right spots is good, too. Morphine is ineffective against it. And, from last time, hurriciain spray (benzocaine?) didn't help, nor lozenges. Basically, nothing I can do but keep my mouth shut and try not to swallow.

My abdomen confuses me. I think initially, I could "feel" the stent or some sharp pain with certain movements. It is not that bad now. I think it feels better than before. I can even press on the parts of my upper belly that were very painful before (and even hard from inflammation without using my abs muscles). I am afraid it may be tender, but I really haven't found any tender spots. I guess I'll find out when the docs come by in the morning and press away.

I'm not positive what to expect for recovery (I really wasn't expecting this procedure to work). Not sure how the stent removal will play a part.

post-surgery TMICollapse )
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Subject:waiting for MRI maybe endoscopic stuff tomorrow
Time:08:02 pm
Still no MRI/MRCP thing done. Plan is to try endoscopically make a larger hole between my stomach and pseudocyst, and even stick a 10mm metal stent in to keep it open. I've been tired tired.. Doctor told me that I had an albumin of 4 (normal is over 20). Albumin is a good chunk of the protein in the liquid part of blood (not the cells). It helps a bit with fluid regulation and other things. It is also an indicator of nutrition in the last few months. I know my appetite has been pretty small, but I've been trying the Weight Watchers Points Plus program for a while, and using all of my points on it (until the last week when I knew I couldn't really eat). So, now I'm just not sure the WWPP plan is right for me. I'm basically wasting away (not a good thing). Sure, I am still overweight and have fat, but I've become weaker, and probably lost muscle mass. Whatever happens will happen. I think they're going to take me down for the MRI in a little while, the nurse just got off the phone with them.
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Subject:omg, the pain
Time:04:42 am
Wow. woke up in some crazy pain. I was lying on my left side and it felt like there was a tube jammed inside of me. I don't know if the tube idea came from a dream, but, I was holding onto the siderails of the bed. Not sure if I was fully on my side or not, felt like I was holding myself in place. The gas bubble or whatever it was felt like it was originating on my left side near my mid-lower back nearish the spine in the muscle layer. At some point I called the nurse, said I was in pain. The charge nurse came in and gave me morphine. Not really sure if it helped, or if the gas pain itself had died down (as it can do on it's own). Eventually the pain travelled around a bit. I think finally it's gone. My stomach feels 'warm' again. Not sure what my protonix order is/was. I didn't get any last night, so maybe need to wait till 10am again.

After he gave me the morphine, I had a 'warm' sensation that felt like a sheet of discomfort/hot right below the muscle layer in my abdomen. I also became kinda nauseous and thought I was just going to puke from the pain on my bed. Luckily, that passed without incident. But for like 10 minutes, I was still tearing from the pain, or the new sensations of discomfort I was feeling. I am still getting much less horrible intermittent gassy pain, towards the front not back now. But, seriously that may have taken the cake for worst gassy pains I've felt thus far.
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Subject:week four frustration
Time:12:59 am
So.. anyhow.. after the 3 update, I picked up a fever on Sunday and went back to Suburban Hospital. Had a CT scan. Found an infection on my pseudocyst and I've been transferred to the University of Maryland. NPO. The last thing I ate was a 1 inch square of Aaron's poptart in the ER.

Seen by a zillion docs today.. All the "Emergency Surgery" labels make me scared. They also did bloodtyping on me. I should get an MRI sooner or later (probably tomorrow), then the docs will figure out what the game plan will be. I believe one of the more popular options include me getting a sexy NG tube again and get tube fed into my jejunum for about 2 weeks to let my insides chill out a bit, then open surgery to drain the pseudocyst. So, a week recovery from that, and eventually I'll be able to taste food again. But, still, docs haven't really told me anything yet, and I am waiting on an MRI.
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[icon] AntihopE
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